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Dear all,
It was 2002, when I was in India and had Hepatitis B symtoms coming in my body. My doctors gave me Injections. Ever since then, I had been feeling tired.
Recently I took steps, and went to see my GP again, To have my body examined. They c ..
Dear Deepak,
You need to be referred to a consultant hepatologist. I am emailing you with details of how to get this referral via the NHS.
Best wishes
Administrator..
Dear Friends,
I develope hepb by an ex husband about over 30 yrs, I was never explain about this ulgy , scary virus. I remember being the hospital I was 29 y/o after yrs ago I would notice pain on my liver (right side ) I even went to see a dr and ..
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Wed Aug 25, 2010 - 10:41
By
Jazzlady
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I need someone to talk to, its like a week now, that I've been diagnose that i'm hepb, and my two kids, if any one can tell me more of it...and where i can go for counselling and treatments, i dont want to waist much time...thank you ..
Hi Lilly,
Would you like to ring our helpline - Opening times: Mondays to Thursdays, from 10.30am to 3pm.
Helpline number: 01227 738279 or to email us go to http://www.hepb.org.uk/contact/index_html
Best wishes
Administrator..
Is there a hotline for hepb in the united states. Can anyone help me also .
jazzlady..
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Wed Aug 25, 2010 - 10:17
By
Jazzlady
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Hi
I have been recently discovered that i have chronic hepb, got my liver biopsy done, waiting for the result.
Am Indian, single, 31, Cambridge - looking for female and male friends to share experiences and information.
Contact me at indian.hepatit ..
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Sat Aug 21, 2010 - 10:46
By
indian-hepatitisb
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hello there,i am new to this,i just got diagnosed as having hepB just last week as the week befor i spent in hospital,sleeping,yellow and unable to eat at all or stay awake for more than 20mins at a time.i am a single parent of 3kiddies,youngest bein ..
Hi Kat,
Let me tell you my story.
At the start of 2009 I was diagnosed with hepB. It was a complete shock to me. (the doc says I must have had it for a long time, maybe even when I was a child.)
Anyway after a few months with tears and mass stress..
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Wed Aug 11, 2010 - 20:46
By
mmx1233
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Hi my name is Anil and am dealing with Chronic Hep B, been officially with chronic hep b for nearly 4 years since it was diagnosed but had it a longer period more like 10 to 15 years dating back to when I went to India and has a accident. But here I ..
Hi Anil, pity no one replied ..........Isn't there a support group in London ? Anyone know ??
I live in NL and not much in the way of a support group at all !
This website is so important..
Seems to be the case that a lot of Hep C support groups ..
Hi Anil,
Hope you doing fine. I would like to meet up people who can share their experience, more information, and how they are coping with this. If you are interested keep in touch via email. My email id is urvenkat2003@yahoo.com
Thank you.
Regar..
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Sat Jul 31, 2010 - 01:46
By
venkat15k
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i was diagnosed with hepb about three years ago and at first life was difficult for me.i had attended a whole lot of appointments, x-rays,mri scan,ultrasound and a lot more but finally i was told that my viral load was at it's lowest level so i don't ..
hi ive been looking on this site for many months now but only just got the courage to join this site i was diagnosed a year ago with hepb i had all the test and scans i was really ill with it and spent a long time in hospital never ate for months i ..
From becky:
hi ive been looking on this site for many months now but only just got the courage to join this site i was diagnosed a year ago with hepb i had all the test and scans i was really ill with it and spent a long time in hospital never ate f..
hi Becky, how is everything and your health. hope your feeling good and strong now.sorry for a very late reply because i have off from this site for sometime now.this time i'm using a user name of strenght instead of plentytoenjoy.so it is the same m..
hi Becky, i forgot to give you my e-mail address. is hope2009os@hotmail.co.uk..
From becky:
hi ive been looking on this site for many months now but only just got the courage to join this site i was diagnosed a year ago with hepb i had all the test and scans i was really ill with it and spent a long time in hospital never ate f..
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Tue Jul 06, 2010 - 20:30
By
student
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Hi all,
I have hepatitis B, which I am taking tenofovir daily.
Daily to day I am feeling great.
However, 2 months ago I torn my knee cartilage. :0(
A firend suggested that I should take some glucosamine and chondrotin supplements to help my cartil ..
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332
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Mon May 10, 2010 - 19:29
By
mmx1233
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Hi all, i was diagnose with hep b 2years,never in my life i ve heard of it before..i didnt know much about this virus until last may 2009..my doctor says i dont need treatment as my viral load is low..the doctors never actually explain things to me.i ..
Yeah I totally agreed with the lack of support and information there is out there. I went through all the emotions that you went through when I first found out I had Hep B. My whole life came down crashin around me and the whole thing made me reall..
Hi lusha80
thanks for the reply ..i have been tested for all STD recently and all test are negative except for hepb.
about the herbs i will talk to my doctor as i have got an appointment march for check-up.that is all they are doing for me at the mo..
Hi,
Well if I was you I would definitely try support your liver now so as ur doin somethin to help it as opposed to takin nothing. Doctors wont advise you about herbal therapies but if u I would try.
I was exactly in the same situation as u in te..
Hello..
.... I recently had a little breakdown about the very same thing. I was diagnosed with Hep B 12 years ago (not in UK) ..hmmm, diagnosed, actually my doctor told me I overcome Hep B and I have nothing to worry about. 10 years later when I sta..
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Sun Mar 14, 2010 - 11:00
By
aurinko
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Hi,
Found this site a month ago. I was diagnosed the Hep B Acute about 2 months ago from sexual contact even though I had protected sex on holidays with a guy I met on a holiday. Was feeling really tired and had the symptons so was diagnosed final ..
Hi lusha80,
I was first diagnosed with Chronic Hep B over a year ago. At first I was really down, but I have now come to terms with it.
I have not told anyone I have Hep B because I do not want a negtive response from people. I decided I know what ..
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521
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Tue Dec 29, 2009 - 14:23
By
mmx1233
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As someone new to this website, it's a little disheartening to see the low level of actual responses to the number of 'views' for the posts. Please could those who have more in the way of info, experience or just words of encouragement please dig de ..
I agree with you ............as a patient myself I try to help other people (especially those newly diagnosed as we all tend to fear the worse at the start ) it is a slow process to get people to contribute but compared to 18 months ago the site is s..
Thanks Brit........perhaps I was expecting too much? I really hope in time things improve, particularly - as you say - for the newly diagnosed...
Am new to this website. Would like to thank you all for the great information you are sharing with us.
I want to check about treatment please. I knew from one year back that i am infected in Hep B.
I did loots of tests and echos and consulted many do..
Hi Georges,
I don't know enough myself to help with any info but I'm sure someone on this site will be able to help. I've never had any treatment at all, although I was diagnosed over 15 years ago and haven't seen a Liver doctor for many years. It ..
Hi Georges,
first of all: if you give some numbers please always also provide the units, otherwise it is impossible to interpret the results. Do you mean 90 IU/ml or 90 E03 IU/ml etc.? Is this the virus titer or liver enzymes?
As I have understood..
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Sat Oct 10, 2009 - 14:00
By
hampelmuse
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Hi everyone, im new here. I discovered that I had a Hep B about 17 years ago, when i was pregnant with my first child. We lived in Europe then. I was told that there was nothing for me to do about it but i can not be a donor, thats all. I was also to ..
Hello Di,
Have you been referred to to expert yet. It is important that you see a specialist. Many of the drugs that are available to treat Hep B do nnoot have bad side effects, in fact many have no side effects at all. When you see the specialis..
Hello Di,
Just wanted to say, try not to think the worst. I know thats easier said than done, but you will drive yourself crazy thinking of the worst possible outcomes all the time. I understand your worries about your kids but i think Simon is righ..
Hi Di! Why do you talk about side effects? Most don't have any as I understand it. The one that may, and only may give side effects, is Peg-interferon. So, I agree with Lily, go see a HepB consultant. In the meantime learn everything you can about He..
Hi, am new to this website. Would like to thank you all for the great information you are sharing with us.
I want to check about treatment please. I knew from one year back that i am infected in Hep B.
I did loots of tests and echos and consulted man..
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Wed Sep 23, 2009 - 07:48
By
Georges
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I've just found this website today. This is the first time I'm talking about my hep b to anyone outside the hospital. I was diagnosed around 16 years ago when I started kidney dialysis through routine blood test. I understand it's chronic and most ..
My view on this is that there is NOTHING at all to be gained from telling people whom you are NOT putting at risk because of their own fears and hence potential prejudice. I remember when I first found out I had the virus I wondered whether I was pu..
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Sun Sep 06, 2009 - 16:14
By
brit
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still waiting for biopsy, has to be done through a vein. varicies need to be tied off. seems like hospital and consultant are dragging their feet. time is rapidly running out (2years left) and it's all getting a bit too much to cope with. ..
Well Things are moving along nicely, No biopsy thankfully,
varices tied off so it's just the Hep B now. viral load is 10 to the power of 7 (that's quite high ) so i hope the meds work to bring it down. I feel OK but i'm usually very tired. hope ypu ..
Hi Foggy,
what meds are you taking? I assume you have cirrhosis (?)
I had a sky high viral load in 2005 (even higher than you) 10 to the power 8 ....but with Entecavir and Adefovir combo but have been undetectible for over a year now and lost my e-..
From brit:
Hi Foggy,
what meds are you taking? I assume you have cirrhosis (?)
I had a sky high viral load in 2005 (even higher than you) 10 to the power 8 ....but with Entecavir and Adefovir combo but have been undetectible for over a year now and..
Hi Brit, Thanks for your response. I'm currently on tenofovir and have next appointment in a few days to find out if the viral load has been reduced. Yes I do have cirrhosis and have had to stop drinking as a result but don't have much of a social li..
Hi Brit, Thanks for your response. I'm currently on tenofovir and have next appointment in a few days to find out if the viral load has been reduced. Yes I do have cirrhosis and have had to stop drinking as a result but don't have much of a social li..
hi Foggy,
good luck and tenofovir seems to have very good potency at different stages of Hep B so fingers crossed for you.
Brit ..
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Sun Aug 30, 2009 - 18:26
By
brit
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I am very happy that I have found this site. I was diagnosed with HepB virus this year and my life just fell apart. I was so surprised to find out about this as I never been ill nor had any sympthoms. I always worked long hours and my energy levels w ..
Hi Andreea_22, and all,
I was diagnosed with HepB 6 months ago, which the doctor say I problaby had it from birth.
Today I had my 6 month check up and give a blood sample.
The Doctor says I will need a liver biopsy ;0(
Did you have a liver biposy?..
Hi!
Fortunatly my liver is ok and I wasn't in need of a biopsy. They just did a liver scan which showed that there was no damage, only that my liver was slightly bigger, but that should go back to normal once the treatment starts working. I'm sorry ..
Hi,
I am not on any medication or treatment. I guess this is why the doctors wants me to have a liver biopsy to work out if I do need treatment or not.
To be honesty Im not one for taking medication (i.e. drugs), I like to look at natural ways of s..
Hi!
I'm not a fan of medication of any kind as well, even when I have a headache I avoid taking it. However, I am really keen to get rid of this nasty virus that I would try anything. I was always on a good diet, I drink plenty of water daily, I pra..
Thanks, I will do...its good to talk to someone in the same situation.
Take care..
Hi!
Same here! I found this site only yesterday and I am ever so thankfull for it. I stayed up until 3am in this morning reading all the messages. I felt as I wasn't alone anymore.
Regards,
A..
Hi Andreea, I'm glad you found this web site, it took me a long time to find this too. I've been dealing with Hep B for many years not at much as the rest of those on this message board but I have been having treatment for many years now and it helps..
Hi all,
first I would like to say that I am happy to see some activity here. I registered already a while ago, but this place seemed to be really abandoned - and at the same time it is the only European forum (up to now) where you can talk about H..
Hi Anil!
Yes, it is a very good website and it really made such a difference to me, beucase I can talk to people openly about my problems and we can all learn from each other. Unfortunatly I cannot do the same with my close friends. People can be qu..
Hi Clara!
I know what you mean there seem to be so many viewers, but very little people actually reply which sad. Poeple shoul get a bit more involved into conversation. I hope things will change. Thank you for the info regarding the liver biopsy, I..
Hi Andrea! Hearing you have HepB is a terrible thing. I assume you have chronic HepB. BUT THERE IS ABSOLUTELY NO NEED TO THINK YOU WILL NOT HAVE A HAPPY AND USEFUL LIFE WITH HEPB. I used capital letters to show you how strongly I feel about this. It ..
Hello everyone!
I was diagnosed with Chronic Hep B 3 years ago am on a combination of Tenofovir and Entecavir now,i was previously on hepsera and lamivudine and my viral load has kept undetected for months now and i absolutely agree with Ian 110%.In..
Hello Ian!
Yes indeed having chronic HepB is a terrible thing. And no I can't get use to it. Is not very simple to deal with it. I am aware of the fact that by keeping a negative attitude won't make me feel better all the contrary, but I can't help ..
Hello Chris!
Thank you very much for all your kind words of encouragement and I am really happy that you are finnaly at peace with your illness and that you are feeling great. I find out that I had HepB last year and it was just by chance that I did..
Hi All,
Hope you are all well. - it a bit cold in the UK today isnt it?
Clara - thanks for the info about the liver biopsy. I will let you all know how I get on.
mmx1233 ..
Hi All,
Hopw you are all well.
I had my liver biopsy!
Is wasn't too bad.... it didnt hurt... just very very unconformable.
There was a funny moment, when the nurse was joking it be OK. when I turned round and saw the needle thingy and said "F**K" a..
Hi, I can understand the depression although i dont even know if i have it yet. Me and my husband are trying for a baby with no results and many other problems wrong with us so we have been having tests done and he found out just last night that he h..
Hi Vicw,
How did the results go? I hope they came back ok.
..
Hi,
Got the results yesterday. I am clear of the virus which is great news but my husband has it.
I didnt understand how he could have is and i didnt after so long but she i explained briefly how i was in the 95% who clear it and hes in the 5%. Hes r..
Hi Vicw,
the doctor's comment you quote about living until 70 amazes me - frankly, it verges on being an absurd comment. I am no doctor myself but have known since 2004 that I have had the chronic form of Hep B. I have read a lot of medical literatu..
Hi Brit,
Thankyou SO much. That really is so helpful. everytime i come on this website i feel so much better.
I am now fully immunised although those who have been immunised are talking about having a blood test afterwards to make sure....i havnt had..
Hi vicw,
Some people with chronic Hep B (however it is a minority) even develop antibodies themselves naturally yes (you can find the statistics somewhere.....) but most others will need treatment in order to do so. Please also remember that not eve..
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Sun Aug 23, 2009 - 12:18
By
brit
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this sounds sad, i have friends but none that know my hep b status. and it would be nice to have friends where im at ease with it, for years its felf like a dirty secret..
but im sure theres more people out there like this.
i live in bristol. so if a ..
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Mon Apr 27, 2009 - 11:42
By
justme
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ive just been to the doctor and only found out today that i have scerosis.
i had a scan a month ago, and they said it was high, number 11. not sure what that even means. and today the doctor told me i have scorosis, but there not gonnna do anything ..
Mate reading all these mortality figures which are banded around on different websites is not what oyu need right now. I was suprised to read your 5-year statement.
It depends on what stage cirrhosis you have. Keep in mind that treatment leads to im..
oh thanks for that mate, god this is all so confusing. i have fibrosis not cirrosis. god wot a dick i am, i got myself in a right state, i feel like im the only person with hep b? thanks for putting my mind at ease, i needed that.
From brit:
Mate re..
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Mon Apr 27, 2009 - 11:36
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justme
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hey guys im a gay man living in bristol, i was diagnosed with hep b twenty years ago. i was very young and didnt understand it, and felt alone and frightened, since then ive only told my partner and ex partner and a couple of friends, ive now gone ba ..
Hi Matey,
I know how it feels. Doctors ok with physical side of virus but not psychological side. I too feel alone and isolated. Contact me any time.
Les (foggyzed)..
I see a few people commenting on fearing Hep B recently. I just wonder if people realize that the majority of people (roughly 75%)with chronic Hep B do NOT die from Hep B they die with it. There is a lot of hope for the future and treatment has impro..
thanks for that brit. yeah that helped alot, im not as worried as i was a few weeks back, and im sure it could be worse.
but that would be a relief to get rid of it, but hey you never know?
im pleased for you that the treatment has worked for you, i ..
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Sun Apr 05, 2009 - 18:43
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justme
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hi all. i have recently been diagnosed with hep b. i've had blood tests ct scan ultra sound and now waiting for biopsy. i'm a single 50 year old gay man with no-one to turn to for help and advice and i'm starting to get a bit depressed and frustrated ..
hey fog, ive just joined this group, i have had hep b for twenty years now, i didnt go to any appointments and tried never to think about it, well the time has come now for me to face it, and its still as frightening as back then,
i live in bristol, ..
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Fri Mar 27, 2009 - 13:40
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justme
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Hi folks. It's good to be able to talk to other HBV infected people without being ctreated as a leper ! I'm in an unusual situation in that I developed HBV from an infected partner - acute - thankfully, I appear to be geting over it - building up str ..
Hi there!
Have you been seen by your GP or hepatologist? They are the most suitable people to advise on this matter. Please, don't be afraid to ask questions. My personal opinion would be that once you got the virus you got it and two things cand ha..
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Thu Feb 26, 2009 - 21:13
By
andreea_22
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i've just been diagnosed with hep b and the disease had already wreck my entire life.i've stopped my education, deserted all my friends and some family members as well.i'm so depressed to the point of suicidal and i could locked myself up for weeks w ..
Hi don't be discouraged HepB isnt the end of the world although it might seem that way now. You could clear the virus or treatments could help supress the virus. I am sorry that I am in London and therefore cant meet up with you. I am HepB and HIV co..
Hi there!
I can understand your frustration. I can relate to you very well as I've been through the same stages as you have last year when I was diagnosed with HepB, and since then I was very depressed. I stopped going to University and I isolated ..
HI FOLKS,THANK YOU VERY MUCH EVERYONE FOR YOUR SUPPORT AND YOUR ENCOURAGEMENT.KEEP DOING THE GOOD WORK YOU ARE DONG ON THIS SITE.I'VE JUST BEEN REFERRED TO A SPECIALISTS UNIT TO SEE A CONSULTANT FOR AN ULTRASOUND SCAN AND PROBABLY FOR A LIVER BIOPSY ..
HI FOLKS,THANK YOU VERY MUCH EVERYONE FOR YOUR SUPPORT AND YOUR ENCOURAGEMENT.KEEP DOING THE GOOD WORK YOUR ARE DONG ON THIS SITE.I'VE JUST BEEN REFERRED TO A SPECIALISTS UNIT TO SEE A CONSULTANT FOR AN ULTRASOUND SCAN AND PROBABLY FOR A LIVER BIOPSY..
From SENSY:
i've just been diagnosed with hep b and the disease had already wreck my entire life.i've stopped my education, deserted all my friends and some family members as well.i'm so depressed to the point of suicidal and i could locked myself up..
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Sat Feb 21, 2009 - 14:49
By
SENSY
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I have been diagnosed roughly 6 years ago but I believe my infection could have been 2 years before that. I really appreciate that there is group like this because we can rarely find someone who is in the same situation as ours.
It would be nice to ..
hi
my name is Les i'm a 50 yr old gay guy in s wales recently diagnosed with chronic hep b. i would be happy to communicate via e mail, but am looking for more personal contact. if you like, please drop me a line. i'm on the message board.
thanks le..
From gerber:
I have been diagnosed roughly 6 years ago but I believe my infection could have been 2 years before that. I really appreciate that there is group like this because we can rarely find someone who is in the same situation as ours.
It wou..
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Wed Oct 15, 2008 - 13:03
By
FOGGYZED
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Hi, I am 37 and female. I am so glad to find a site with people experiencing the same. I split up with my partner 6 months ago and we are now back together, but after one silly mistake caught Hep B. I have had to put my children through vaccinations ..
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Sun Oct 05, 2008 - 19:48
By
JaneDoh
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Hi everyone, I thought I'd write an update on me as I have been off the rader for a couple of months. Well last time I worte I a little was busy with my exams now I have pass My MSc I have a little free time. I have dropped my viral load from 990 mil ..
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Sun Sep 07, 2008 - 22:47
By
anil
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Hi there,
I am a 23 year old student from Vienna.
Just found this forum which seems so be one of the very few in the world? In Austria where I live we do not have any, as well as in Germany (I checked). So if somebody has some questions on the the ..
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Thu May 22, 2008 - 17:51
By
hampelmuse
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Hello, I was diagnosed in March/April 08 with Hep B, I had a reactive arthritis which was horrendous and put me in hospital for nearly 2wks as i was completely incapacitated. ..at its peak my LFT's went upto 1217 it is now 621. Can anyone advice on ..
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Mon May 19, 2008 - 18:38
By
buzzybee
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hi my names andy and i was diagnosed has having acute hep b about 7 months ago they only found out because i was feeling bit lousy and under the weather because of home life/work etc so the doc took bloods and found my alt was high amongst other thin ..
Hi Andy,
I can't say how much I can help, but I can certainly chat as a chronic hep b carrier, diagnosed routinely on pregnancy. If you read my post in Emotional response, you will get an idea of my circumstances and problems, which are nowhere near..
hi singlemum
all i know at the moment is my hep hb sag is positive amd my alt has been elevated up around the 250 - 390 mark for the last 7 months and my clotting levels are abnormal(so on medication for that) i go back on thursday for the results o..
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Sun Feb 03, 2008 - 21:14
By
andyp
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