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I am very happy that I have found this site. I was diagnosed with HepB virus this year and my life just fell apart. I was so surprised to find out about this as I never been ill nor had any sympthoms. I always worked long hours and my energy levels w ..
Hi Andreea_22, and all,
I was diagnosed with HepB 6 months ago, which the doctor say I problaby had it from birth.
Today I had my 6 month check up and give a blood sample.
The Doctor says I will need a liver biopsy ;0(
Did you have a liver biposy?..
Hi!
Fortunatly my liver is ok and I wasn't in need of a biopsy. They just did a liver scan which showed that there was no damage, only that my liver was slightly bigger, but that should go back to normal once the treatment starts working. I'm sorry ..
Hi,
I am not on any medication or treatment. I guess this is why the doctors wants me to have a liver biopsy to work out if I do need treatment or not.
To be honesty Im not one for taking medication (i.e. drugs), I like to look at natural ways of s..
Hi!
I'm not a fan of medication of any kind as well, even when I have a headache I avoid taking it. However, I am really keen to get rid of this nasty virus that I would try anything. I was always on a good diet, I drink plenty of water daily, I pra..
Thanks, I will do...its good to talk to someone in the same situation.
Take care..
Hi!
Same here! I found this site only yesterday and I am ever so thankfull for it. I stayed up until 3am in this morning reading all the messages. I felt as I wasn't alone anymore.
Regards,
A..
Hi Andreea, I'm glad you found this web site, it took me a long time to find this too. I've been dealing with Hep B for many years not at much as the rest of those on this message board but I have been having treatment for many years now and it helps..
Hi all,
first I would like to say that I am happy to see some activity here. I registered already a while ago, but this place seemed to be really abandoned - and at the same time it is the only European forum (up to now) where you can talk about H..
Hi Anil!
Yes, it is a very good website and it really made such a difference to me, beucase I can talk to people openly about my problems and we can all learn from each other. Unfortunatly I cannot do the same with my close friends. People can be qu..
Hi Clara!
I know what you mean there seem to be so many viewers, but very little people actually reply which sad. Poeple shoul get a bit more involved into conversation. I hope things will change. Thank you for the info regarding the liver biopsy, I..
Hi Andrea! Hearing you have HepB is a terrible thing. I assume you have chronic HepB. BUT THERE IS ABSOLUTELY NO NEED TO THINK YOU WILL NOT HAVE A HAPPY AND USEFUL LIFE WITH HEPB. I used capital letters to show you how strongly I feel about this. It ..
Hello everyone!
I was diagnosed with Chronic Hep B 3 years ago am on a combination of Tenofovir and Entecavir now,i was previously on hepsera and lamivudine and my viral load has kept undetected for months now and i absolutely agree with Ian 110%.In..
Hello Ian!
Yes indeed having chronic HepB is a terrible thing. And no I can't get use to it. Is not very simple to deal with it. I am aware of the fact that by keeping a negative attitude won't make me feel better all the contrary, but I can't help ..
Hello Chris!
Thank you very much for all your kind words of encouragement and I am really happy that you are finnaly at peace with your illness and that you are feeling great. I find out that I had HepB last year and it was just by chance that I did..
Hi All,
Hope you are all well. - it a bit cold in the UK today isnt it?
Clara - thanks for the info about the liver biopsy. I will let you all know how I get on.
mmx1233 ..
Hi All,
Hopw you are all well.
I had my liver biopsy!
Is wasn't too bad.... it didnt hurt... just very very unconformable.
There was a funny moment, when the nurse was joking it be OK. when I turned round and saw the needle thingy and said "F**K" a..
Hi, I can understand the depression although i dont even know if i have it yet. Me and my husband are trying for a baby with no results and many other problems wrong with us so we have been having tests done and he found out just last night that he h..
Hi Vicw,
How did the results go? I hope they came back ok.
..
Hi,
Got the results yesterday. I am clear of the virus which is great news but my husband has it.
I didnt understand how he could have is and i didnt after so long but she i explained briefly how i was in the 95% who clear it and hes in the 5%. Hes r..
Hi Vicw,
the doctor's comment you quote about living until 70 amazes me - frankly, it verges on being an absurd comment. I am no doctor myself but have known since 2004 that I have had the chronic form of Hep B. I have read a lot of medical literatu..
Hi Brit,
Thankyou SO much. That really is so helpful. everytime i come on this website i feel so much better.
I am now fully immunised although those who have been immunised are talking about having a blood test afterwards to make sure....i havnt had..
Hi vicw,
Some people with chronic Hep B (however it is a minority) even develop antibodies themselves naturally yes (you can find the statistics somewhere.....) but most others will need treatment in order to do so. Please also remember that not eve..
Hello everyone
I just came across this website and have found everyones stories very useful as I am in the same situation. I know there has not been any posts for many years, but i am happy to keep this posts going.
I am from Sydney Australia. We ..
Hi Simon
Your excellent attitude
"Fight the Virus back"
Reckon there's a book behind that one, thanks so much for your post. Some threads are years old and sort of peter out, but we are here to respond if you need us. I think you are very right, ..
Nice Post..
generic viagra | viagra online | buy viagra..
Hi Simon,
Thank you for saying all that. I'm sure this will help a lot of members here to feel more at ease.
This virus may be disgusted by those who do not know much, if nothing, about it but I have to say that it is not that bad at all compared ..
hi everyone,am gilbert cm, am 30 years old single from philippines, I am new to this site and would like to share my experience regarding hep b virus..
from our native province, at the age 25 I decided to move out and find my self a better ..
Hello Brando,
My situation was similar to yours. I was diagnosed with Hep.B at 24 years old , in 2008, in my native country.They said it doesn't look to be chronic and they gave me light treatment but after a while it didn't seem efficient at all.I w..
Hi everyone. I hope to find friends here who could really understand someone inflicted with infectious disease. Like all of u, im also suffering from hepa b. Worst, im a nurse and i felt like being paralized now and useless....
Hi everyone. I hope to find friends here who could really understand someone inflicted with infectious disease. Like all of u, im also suffering from hepa b. Worst, im a nurse and i felt like being paralized now and useless....
Hi JCD
I feel paralised when i meet nhs and other powers that still plan almost no vaccination and safety testing until 2022.
As bad as diagnosis is it is usually a garantee you wont die or infect someone else and workwise there are options for nur..
i am planning to get married soon but unfortunately i was diagnosed with chronic hepa-b. i am worried about transmitting the disease to my future wife. please help..
Hi Dennis
Just look in her eyes, hold her hand and tell her you have hbv and she needs a quick vaccination. Once that is sorted you make love have kids and get them vaccinated, then grandkids and get them vaccinated. then you grow old and die of o..
hi im very glad to find this site think this could reapply help me a lot by talking to peole that has same problem as mine...i got pregnant last year and they do some bood test and the result that i have a hep b, then i been refered to see the dr but..
I am a 22 yr old guy from India and I am very pleased to see this website. Just like many others on this forum I have chronic hep B. I was first diagnosed with this when I was 15 yr old. I was a child then and I didnt know anything about this conditi..
Hi Vishnu
You need to understand hbv properly and stop it causing you so much suffering and doubt.
There is no reason if you have been diagnosed to imagine it will shorten your life. You mention nothing about whether you have an active or inactive..
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Tue May 21, 2013 - 21:03
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administrator
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yesterday I cantact with my friend who is carrier of Hepatit b and he tell me that my doctor said in 12 years ago I cant transmite Hepatit B to anyyone but I dont know It s true or not
I felt when he was talking a bit of his saliva splash in my eye ..
Dear Maria
Calm done nothing, repeat nothing has occured that could give you hepatitis b. a bit of saliva in the eye is not a risk at all. Try to understand tests are there to save your life from viruses, for instance hiv and hbv both need many ye..
some of us were not lucky.we discover dat we have the disease before we could thik of vaccin.i do say to my self dat if i could be given a little chance of bein hepatitis b negative,i wiil rush for the vaccin. Do the same while u are stil negative an..
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Thu Apr 04, 2013 - 22:55
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maqeen
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hi i ve been diagonised with hb from birth. am a young guy of 26 and am looking up to meet a woman with d same condition. i dont have no sympthoms of d virus. ..
Dear Sunny
It is always going to be easier to vaccinate love interests than find a woman with hbv who happens to fall in love with you.
Your HBV positive state is a chance to meet the other half and immunise her against the worlds most common bug. ..
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Sat Sep 29, 2012 - 21:37
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administrator
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so i was drunk and stupidly had unprotected sex with a girl who ive been told has it, i asked her if she had anything before we had sex and she said no, but she wouldnt say yes even if she did, am i garunteed to have it, im gonna get tested straight ..
Dear Leroy
4 out of 5 partners of hbv positive individuals are uninfected after a year of sex. So one night is absolutely not a garantee. many hbv positive patients have a low viral load and thus are not having the virus infectious in saliva or sex..
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Tue Sep 04, 2012 - 01:19
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administrator
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Hi everyone,
My name is Doby, I'm a Bulgarian University student studying in Birmingham. My mother, who currently is in Bulgaria, has had chronic Hepatitis B for about 7 years. During that time we sought treatment in Bulgaria by the top professi ..
Hi Doby
There are a number of UK Consultants that take on patients from overseas in London and the Midlands. The key here is we need much more accurate info on your mums condition mainly liver function results hbv results scan biopsy results and a ..
Hi Paul,
Well, unfortunately my mother has not done any tests in the past 6 months (her results were worsening and she is now afraid to go for a test). The problem is that many doctors in Bulgaria are unwilling or uncapable of tracking the progr..
hi doby
the number reaches me please call and we can arrange a consultation with a london expert.
paul..
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Mon May 21, 2012 - 23:19
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administrator
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Hi, I'm a 31 year old male from the
midlands, I was wondering if there were any
Hep B Support groups/ meetings around here? ..
Hey Immya,I'm looking for support groups around the Mindlands as well. Hopefully someone can help us ..
Birmingham Hepatitis C Support Group
Description - A support group for members and their families affected by hepatitis C, based in the West Midlands.
Contact Name - Tamelia Hamilton
Telephone - 0121 301 1600
Email - tamelia.hamilton@bsmhft@nhs.uk
We..
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Sun Apr 29, 2012 - 21:09
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administrator
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As someone new to this website, it's a little disheartening to see the low level of actual responses to the number of 'views' for the posts. Please could those who have more in the way of info, experience or just words of encouragement please dig de ..
I agree with you ............as a patient myself I try to help other people (especially those newly diagnosed as we all tend to fear the worse at the start ) it is a slow process to get people to contribute but compared to 18 months ago the site is s..
Thanks Brit........perhaps I was expecting too much? I really hope in time things improve, particularly - as you say - for the newly diagnosed...
Am new to this website. Would like to thank you all for the great information you are sharing with us.
I want to check about treatment please. I knew from one year back that i am infected in Hep B.
I did loots of tests and echos and consulted many do..
Hi Georges,
I don't know enough myself to help with any info but I'm sure someone on this site will be able to help. I've never had any treatment at all, although I was diagnosed over 15 years ago and haven't seen a Liver doctor for many years. It ..
Hi Georges,
first of all: if you give some numbers please always also provide the units, otherwise it is impossible to interpret the results. Do you mean 90 IU/ml or 90 E03 IU/ml etc.? Is this the virus titer or liver enzymes?
As I have understood..
Hep C Nomads has just started a Hep B Section, please feel free to register ...
www.hepcnomads.co.uk
Or google hep c nomads...
There's lots of information, advice and support about treating or living with hepatitis on here. Mainly Hep C but a g..
From peaksandvalleys:
As someone new to this website, it's a little disheartening to see the low level of actual responses to the number of 'views' for the posts. Please could those who have more in the way of info, experience or just words of encou..
hi Elle
Well done for trying the meds, you sound like me, hep c, liver damage and other ailments. I did riba and inter in 2007 low load and cleared, just. Hows your stats on the tx? is hcv gone yet? and how long you got left on this course. I'd b..
Dear All
Many many viewers email or freephone the help line, also many find their questions answered without having to post.
i just feel good 150,000 people have viewed audited up to date Q and A's on these crucial issues. it adds up to every diagn..
Just like to send my thanks to Paul for providing this service. When I was looking for online support I found very little for HepB+ patients, so big pat on the back to Paul.
Nomad..
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Sat Feb 18, 2012 - 17:15
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Nomad
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Hi there, I am newly diagnosed hep b. when went for viral screening for ivf. Although the ivf clinic did not reject ivf treatment, they need me to see a hepatologist first. Just found out today that I need to have pcr viral load done b4 I will b se ..
Hi Lemon tree
If its any help all hbv ivf feel like you at some point due to the system.
Luckily we havw dealt with many ivf hbv mums at the other end of the journey too.
Bottom line while giving patients IVF the NHS often radiates the feeling of ..
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Sun Feb 12, 2012 - 14:03
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Hi am new to this site, i am Chronic HBV since 1997, live in london but am from west africa. single with a teenage child.
Hi am new to this site, am chronic HBV since 1997 and this has made my life a living hell, being used by other people. loking f ..
Hi Shasher,
Why is it a living hell?
Are you in a lot of pain or dealing with a seriously failing liver?
If not, focus on the positives, any time you want a partner remember there is a good vaccine, so transmission is not a problem for partners an..
Hi Paul we spoke already on phone, thanks for the call, i really appreciate it knowing that i have someone to talk to anytime. It Isha..
Hi shasher,you are not alone.am in london as well and a west African.This has been a big blow that has rendered me so reserved from friends so much such that it even raises alarm as to what is wrong with me.If possible ,lets get in touch ok?
..
From shasher:
Hi am new to this site, i am Chronic HBV since 1997, live in london but am from west africa. single with a teenage child.
lets link up if possible
..
Hi, i know how you feel thanks very much. you can email on shashababy40@gmail.com anytime. Have a blessed day...
hi!!i was diagnosed by my doctor chronic hep b in year 2005-2006.. it was a school screening (im studying Bachelor of science in nursing) when i find out that i was a carrier..my doctor gave a certificate so that i can continue my studies because my ..
hi!!i was diagnosed by my doctor chronic hep b in year 2005-2006.. it was a school screening (im studying Bachelor of science in nursing) when i find out that i was a carrier..my doctor gave a certificate so that i can continue my studies because my ..
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Sat Dec 10, 2011 - 04:41
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sushie
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Hi there,
I am a 23 year old student from Vienna.
Just found this forum which seems so be one of the very few in the world? In Austria where I live we do not have any, as well as in Germany (I checked). So if somebody has some questions on the the ..
Dear Hampelmuse
I'd be interested to know how you are doing and also if you are now on Telbivudine, and also info on your liver health too. Thanks for praising the Boards, we must keep them up to date from now on, very best of luck
Paul..
hi,can i ask u how is your therapy working and how much does it cost???thanx a lot..
hi,i had my treatment before when i was in college,, year 2005 to 2006.. my doctor prescribed me lamivudine for 6 mos.. unfortunately i wasn't able to finish my treatment due to financial problem..hepa b is a big burden to me because of that i wasn't..
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Sat Dec 10, 2011 - 04:11
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sushie
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hi everyone, i,m a recently diagnosed chronic hep b. patient. i was born and bred in west Africa. i,m a 31yr old male. this is one of the few active sites about this condition, though it,s not that active. i want to encourage all carriers to be optim ..
Hello,
250,000 viewers is as active as I can take at the moment. Help Groups are a good place to start meeting people with liver ailments.
With the world having such a good vaccination for hepatitis b, it is important patients never let their infe..
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Tue Nov 08, 2011 - 22:26
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administrator
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Was told yesterday that I had a chronic hep B infection. This came as a complete shock and I'm struggling to cope with the news at the minute. I have been referred to a liver specialist for a scan but the doctor mentioned superinfection. I have been ..
Hi Jacey
the shock and the extra shock of the googled hepatitis b search are worries/pain many of us feel go thru, you are not panicking you are being brave and you found the website with a helpline do feel free to call 9/5 mon fri. We are the only ..
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Sat Sep 17, 2011 - 23:34
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Please can someone give me a name of good hospital or specialist in london and in manchester city so i can get my hep b monitored by them.i need a good private hospital or specialist and not NHS becouse i am only covered by a medical insurance and no ..
Hi Abdul
Try Professor Graham Foster. Title. Consultant Hepatologist. Qualifications. BA FRCP PhD. NHS base ... 020 7882 7241 Doctor: 020 7882 7242. Fax. 020 7882 2192
At
http://www.londonbridgehospital.com/LBH/consultant-det/professor-graham-foste..
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Wed Aug 24, 2011 - 20:16
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Hi,
I live in Belfast - diagnosed last week - referred to the RVH. It would be great to meet up with or talk to local people with Hep b - the only person I've told so far is my wife - she gets her results next week. ..
Royal Victoria Hospital Liver Support Group
Description - is based in Belfast and provides support and advice to patients with liver disease and their families throughout Northern Ireland.
Contact name - Seamus Cunningham
Telephone - 07769 945534..
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Wed Aug 24, 2011 - 00:43
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administrator
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Initially many partners go "cold" when diagnosed, however and understanding of HBV risks and vaccinations protect loved ones, ma ..
Dear Forum Members
Initially many partners go "cold" when diagnosed, however and understanding of HBV risks and vaccinations protect loved ones, many warm up again. We take huge numbers of calls relating to this.
Once again all your thoughts posts..
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Tue May 03, 2011 - 23:28
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debbie
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Hep C Nomads has just started a Hep B Section, please feel free to register ...
www.hepcnomads.co.uk
Or google hep c nomads...
..
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Thu Mar 24, 2011 - 13:01
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Nomad
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I was diagnosed with an acute HepB infection last summer (after being infected earlier in the year). By Christmas time I was feeling alright and told that my blood tests were fine.
Since then I have been wondering about sex after an acute infecti ..
hi bj
sorry for the delay.
are you sure the blood results related to your hbv?
you need to confirm you have hepatitis b antibodies (immunity in your blood) then you are confirmed safe so to speak. I guess that is what i did. I really needed to see t..
Thank you for that Paul.
Will pop in to the sexual health clinic on Monday and get it double double checked, just to be sure.
-B..
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Sat Mar 12, 2011 - 18:42
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BJ-Scotland
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I was diagnosed with Hep B a 3 months ago at a GUM clinic, after having unprotected oral sex and recently found out that the indications are that i'm actually a chronic carrier, so a previous infection is likely to have occurred. I feel so awful abou ..
Hi Fellow North Londoner
Maybe the first thing is to focus on is everybodies health. Your wife is vaccinated and fine for now, your daughters result and vaccination and your liver scan result are the next steps. I reckon your chance of clearing HBV..
thanks for your reply. Just to add that things are really looking up. my daughter and wife are both clear, and i'm much more positive...
That's wonderful news.
If you are a chronic carrier it is best not to assume sex was the only risk. It is also good to remember HBV is most often acquired silently during childhood games or overseas inoculations and operations quite innocently. Ma..
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Sat Jan 29, 2011 - 19:37
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administrator
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Hello, I was diagnosed in March/April 08 with Hep B, I had a reactive arthritis which was horrendous and put me in hospital for nearly 2wks as i was completely incapacitated. ..at its peak my LFT's went upto 1217 it is now 621. Can anyone advice on ..
Hello Buzzybee
An avoidance of liver wearing medicines eg painkillers, tranquillisers and a slim figure are a big help to the long term infected. I do hope you cleared your HBV instead. As for Turkey, it's predicament of 5-10% infection levels is ..
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Thu Nov 25, 2010 - 18:51
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administrator
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Hi, I am 37 and female. I am so glad to find a site with people experiencing the same. I split up with my partner 6 months ago and we are now back together, but after one silly mistake caught Hep B. I have had to put my children through vaccinations ..
Dear Jane Doh
Forgive the delay in reply our board has lost its operators due to deaths and retirements. You are quite right only the specialists tend to know what they are talking about when it comes to hepatitis, you need a heptologist. The Inter..
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Thu Nov 25, 2010 - 18:28
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Hi everyone, I thought I'd write an update on me as I have been off the rader for a couple of months. Well last time I worte I a little was busy with my exams now I have pass My MSc I have a little free time. I have dropped my viral load from 990 mil ..
Hi Anil
Great News about your Tenofovir experience, as regards a London Group for support we are having a meeting in December, probably a Saturday before Xmas 13th December is possible. Please check the Site HomePage as we will announce it there soo..
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Thu Nov 25, 2010 - 18:24
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this sounds sad, i have friends but none that know my hep b status. and it would be nice to have friends where im at ease with it, for years its felf like a dirty secret..
but im sure theres more people out there like this.
i live in bristol. so if a ..
Hello Just me,
It's sometimes good to remember 1 in 12 humans have viral hepatitis and 1 in 80 humans in the UK. You are surrounded by 750,000 infected British citizens, it's not really a dirty secret, more a species extinction event we are all ove..
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Thu Nov 25, 2010 - 18:18
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administrator
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Hi all,
I have hepatitis B, which I am taking tenofovir daily.
Daily to day I am feeling great.
However, 2 months ago I torn my knee cartilage. :0(
A firend suggested that I should take some glucosamine and chondrotin supplements to help my cartil ..
Dear mmx1233
glucosamine and chondrotin are very good for your cartilege and have far fewer reports of side effects than older drugs used for the same purpose. However it is worth consulting your doctor to make sure if you are on a long course of th..
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Thu Nov 25, 2010 - 18:13
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administrator
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hi ive had heb b for 22 years now, by this time you would imagine i have got used to it, the fact is i havnt. and in all that time, i have only ever told partners and found its been used against me a couple of times, i would love to have friend who a ..
Dear Just Me
I've had Viral Hepatitis for 24 years and talking to the right people is a key part of the therapy for me. We are working on a national network of groups for patients and carers to attend, if Bristol gets one it will be advertised on t..
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Thu Nov 25, 2010 - 18:05
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administrator
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Dear all,
It was 2002, when I was in India and had Hepatitis B symtoms coming in my body. My doctors gave me Injections. Ever since then, I had been feeling tired.
Recently I took steps, and went to see my GP again, To have my body examined. They c ..
Dear Deepak,
You need to be referred to a consultant hepatologist. I am emailing you with details of how to get this referral via the NHS.
Best wishes
Administrator..
Dear Friends,
I develope hepb by an ex husband about over 30 yrs, I was never explain about this ulgy , scary virus. I remember being the hospital I was 29 y/o after yrs ago I would notice pain on my liver (right side ) I even went to see a dr and ..
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Wed Aug 25, 2010 - 10:41
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Jazzlady
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I need someone to talk to, its like a week now, that I've been diagnose that i'm hepb, and my two kids, if any one can tell me more of it...and where i can go for counselling and treatments, i dont want to waist much time...thank you ..
Hi Lilly,
Would you like to ring our helpline - Opening times: Mondays to Thursdays, from 10.30am to 3pm.
Helpline number: 01227 738279 or to email us go to http://www.hepb.org.uk/contact/index_html
Best wishes
Administrator..
Is there a hotline for hepb in the united states. Can anyone help me also .
jazzlady..
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Wed Aug 25, 2010 - 10:17
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Jazzlady
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Hi
I have been recently discovered that i have chronic hepb, got my liver biopsy done, waiting for the result.
Am Indian, single, 31, Cambridge - looking for female and male friends to share experiences and information.
Contact me at indian.hepatit ..
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Sat Aug 21, 2010 - 10:46
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indian-hepatitisb
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hello there,i am new to this,i just got diagnosed as having hepB just last week as the week befor i spent in hospital,sleeping,yellow and unable to eat at all or stay awake for more than 20mins at a time.i am a single parent of 3kiddies,youngest bein ..
Hi Kat,
Let me tell you my story.
At the start of 2009 I was diagnosed with hepB. It was a complete shock to me. (the doc says I must have had it for a long time, maybe even when I was a child.)
Anyway after a few months with tears and mass stress..
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Wed Aug 11, 2010 - 20:46
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mmx1233
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Hi my name is Anil and am dealing with Chronic Hep B, been officially with chronic hep b for nearly 4 years since it was diagnosed but had it a longer period more like 10 to 15 years dating back to when I went to India and has a accident. But here I ..
Hi Anil, pity no one replied ..........Isn't there a support group in London ? Anyone know ??
I live in NL and not much in the way of a support group at all !
This website is so important..
Seems to be the case that a lot of Hep C support groups ..
Hi Anil,
Hope you doing fine. I would like to meet up people who can share their experience, more information, and how they are coping with this. If you are interested keep in touch via email. My email id is urvenkat2003@yahoo.com
Thank you.
Regar..
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Sat Jul 31, 2010 - 01:46
By
venkat15k
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i was diagnosed with hepb about three years ago and at first life was difficult for me.i had attended a whole lot of appointments, x-rays,mri scan,ultrasound and a lot more but finally i was told that my viral load was at it's lowest level so i don't ..
hi ive been looking on this site for many months now but only just got the courage to join this site i was diagnosed a year ago with hepb i had all the test and scans i was really ill with it and spent a long time in hospital never ate for months i ..
From becky:
hi ive been looking on this site for many months now but only just got the courage to join this site i was diagnosed a year ago with hepb i had all the test and scans i was really ill with it and spent a long time in hospital never ate f..
hi Becky, how is everything and your health. hope your feeling good and strong now.sorry for a very late reply because i have off from this site for sometime now.this time i'm using a user name of strenght instead of plentytoenjoy.so it is the same m..
hi Becky, i forgot to give you my e-mail address. is hope2009os@hotmail.co.uk..
From becky:
hi ive been looking on this site for many months now but only just got the courage to join this site i was diagnosed a year ago with hepb i had all the test and scans i was really ill with it and spent a long time in hospital never ate f..
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1311
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Tue Jul 06, 2010 - 20:30
By
student
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Hi all, i was diagnose with hep b 2years,never in my life i ve heard of it before..i didnt know much about this virus until last may 2009..my doctor says i dont need treatment as my viral load is low..the doctors never actually explain things to me.i ..
Yeah I totally agreed with the lack of support and information there is out there. I went through all the emotions that you went through when I first found out I had Hep B. My whole life came down crashin around me and the whole thing made me reall..
Hi lusha80
thanks for the reply ..i have been tested for all STD recently and all test are negative except for hepb.
about the herbs i will talk to my doctor as i have got an appointment march for check-up.that is all they are doing for me at the mo..
Hi,
Well if I was you I would definitely try support your liver now so as ur doin somethin to help it as opposed to takin nothing. Doctors wont advise you about herbal therapies but if u I would try.
I was exactly in the same situation as u in te..
Hello..
.... I recently had a little breakdown about the very same thing. I was diagnosed with Hep B 12 years ago (not in UK) ..hmmm, diagnosed, actually my doctor told me I overcome Hep B and I have nothing to worry about. 10 years later when I sta..
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1586
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Sun Mar 14, 2010 - 11:00
By
aurinko
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Hi,
Found this site a month ago. I was diagnosed the Hep B Acute about 2 months ago from sexual contact even though I had protected sex on holidays with a guy I met on a holiday. Was feeling really tired and had the symptons so was diagnosed final ..
Hi lusha80,
I was first diagnosed with Chronic Hep B over a year ago. At first I was really down, but I have now come to terms with it.
I have not told anyone I have Hep B because I do not want a negtive response from people. I decided I know what ..
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1038
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Tue Dec 29, 2009 - 14:23
By
mmx1233
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Hi everyone, im new here. I discovered that I had a Hep B about 17 years ago, when i was pregnant with my first child. We lived in Europe then. I was told that there was nothing for me to do about it but i can not be a donor, thats all. I was also to ..
Hello Di,
Have you been referred to to expert yet. It is important that you see a specialist. Many of the drugs that are available to treat Hep B do nnoot have bad side effects, in fact many have no side effects at all. When you see the specialis..
Hello Di,
Just wanted to say, try not to think the worst. I know thats easier said than done, but you will drive yourself crazy thinking of the worst possible outcomes all the time. I understand your worries about your kids but i think Simon is righ..
Hi Di! Why do you talk about side effects? Most don't have any as I understand it. The one that may, and only may give side effects, is Peg-interferon. So, I agree with Lily, go see a HepB consultant. In the meantime learn everything you can about He..
Hi, am new to this website. Would like to thank you all for the great information you are sharing with us.
I want to check about treatment please. I knew from one year back that i am infected in Hep B.
I did loots of tests and echos and consulted man..
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Wed Sep 23, 2009 - 07:48
By
Georges
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I've just found this website today. This is the first time I'm talking about my hep b to anyone outside the hospital. I was diagnosed around 16 years ago when I started kidney dialysis through routine blood test. I understand it's chronic and most ..
My view on this is that there is NOTHING at all to be gained from telling people whom you are NOT putting at risk because of their own fears and hence potential prejudice. I remember when I first found out I had the virus I wondered whether I was pu..
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845
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Sun Sep 06, 2009 - 16:14
By
brit
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still waiting for biopsy, has to be done through a vein. varicies need to be tied off. seems like hospital and consultant are dragging their feet. time is rapidly running out (2years left) and it's all getting a bit too much to cope with. ..
Well Things are moving along nicely, No biopsy thankfully,
varices tied off so it's just the Hep B now. viral load is 10 to the power of 7 (that's quite high ) so i hope the meds work to bring it down. I feel OK but i'm usually very tired. hope ypu ..
Hi Foggy,
what meds are you taking? I assume you have cirrhosis (?)
I had a sky high viral load in 2005 (even higher than you) 10 to the power 8 ....but with Entecavir and Adefovir combo but have been undetectible for over a year now and lost my e-..
From brit:
Hi Foggy,
what meds are you taking? I assume you have cirrhosis (?)
I had a sky high viral load in 2005 (even higher than you) 10 to the power 8 ....but with Entecavir and Adefovir combo but have been undetectible for over a year now and..
Hi Brit, Thanks for your response. I'm currently on tenofovir and have next appointment in a few days to find out if the viral load has been reduced. Yes I do have cirrhosis and have had to stop drinking as a result but don't have much of a social li..
Hi Brit, Thanks for your response. I'm currently on tenofovir and have next appointment in a few days to find out if the viral load has been reduced. Yes I do have cirrhosis and have had to stop drinking as a result but don't have much of a social li..
hi Foggy,
good luck and tenofovir seems to have very good potency at different stages of Hep B so fingers crossed for you.
Brit ..
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1231
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Sun Aug 30, 2009 - 18:26
By
brit
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ive just been to the doctor and only found out today that i have scerosis.
i had a scan a month ago, and they said it was high, number 11. not sure what that even means. and today the doctor told me i have scorosis, but there not gonnna do anything ..
Mate reading all these mortality figures which are banded around on different websites is not what oyu need right now. I was suprised to read your 5-year statement.
It depends on what stage cirrhosis you have. Keep in mind that treatment leads to im..
oh thanks for that mate, god this is all so confusing. i have fibrosis not cirrosis. god wot a dick i am, i got myself in a right state, i feel like im the only person with hep b? thanks for putting my mind at ease, i needed that.
From brit:
Mate re..
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1063
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Mon Apr 27, 2009 - 11:36
By
justme
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hey guys im a gay man living in bristol, i was diagnosed with hep b twenty years ago. i was very young and didnt understand it, and felt alone and frightened, since then ive only told my partner and ex partner and a couple of friends, ive now gone ba ..
Hi Matey,
I know how it feels. Doctors ok with physical side of virus but not psychological side. I too feel alone and isolated. Contact me any time.
Les (foggyzed)..
I see a few people commenting on fearing Hep B recently. I just wonder if people realize that the majority of people (roughly 75%)with chronic Hep B do NOT die from Hep B they die with it. There is a lot of hope for the future and treatment has impro..
thanks for that brit. yeah that helped alot, im not as worried as i was a few weeks back, and im sure it could be worse.
but that would be a relief to get rid of it, but hey you never know?
im pleased for you that the treatment has worked for you, i ..
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1179
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Sun Apr 05, 2009 - 18:43
By
justme
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hi all. i have recently been diagnosed with hep b. i've had blood tests ct scan ultra sound and now waiting for biopsy. i'm a single 50 year old gay man with no-one to turn to for help and advice and i'm starting to get a bit depressed and frustrated ..
hey fog, ive just joined this group, i have had hep b for twenty years now, i didnt go to any appointments and tried never to think about it, well the time has come now for me to face it, and its still as frightening as back then,
i live in bristol, ..
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1348
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Fri Mar 27, 2009 - 13:40
By
justme
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Hi folks. It's good to be able to talk to other HBV infected people without being ctreated as a leper ! I'm in an unusual situation in that I developed HBV from an infected partner - acute - thankfully, I appear to be geting over it - building up str ..
Hi there!
Have you been seen by your GP or hepatologist? They are the most suitable people to advise on this matter. Please, don't be afraid to ask questions. My personal opinion would be that once you got the virus you got it and two things cand ha..
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1219
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Thu Feb 26, 2009 - 21:13
By
andreea_22
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i've just been diagnosed with hep b and the disease had already wreck my entire life.i've stopped my education, deserted all my friends and some family members as well.i'm so depressed to the point of suicidal and i could locked myself up for weeks w ..
Hi don't be discouraged HepB isnt the end of the world although it might seem that way now. You could clear the virus or treatments could help supress the virus. I am sorry that I am in London and therefore cant meet up with you. I am HepB and HIV co..
Hi there!
I can understand your frustration. I can relate to you very well as I've been through the same stages as you have last year when I was diagnosed with HepB, and since then I was very depressed. I stopped going to University and I isolated ..
HI FOLKS,THANK YOU VERY MUCH EVERYONE FOR YOUR SUPPORT AND YOUR ENCOURAGEMENT.KEEP DOING THE GOOD WORK YOU ARE DONG ON THIS SITE.I'VE JUST BEEN REFERRED TO A SPECIALISTS UNIT TO SEE A CONSULTANT FOR AN ULTRASOUND SCAN AND PROBABLY FOR A LIVER BIOPSY ..
HI FOLKS,THANK YOU VERY MUCH EVERYONE FOR YOUR SUPPORT AND YOUR ENCOURAGEMENT.KEEP DOING THE GOOD WORK YOUR ARE DONG ON THIS SITE.I'VE JUST BEEN REFERRED TO A SPECIALISTS UNIT TO SEE A CONSULTANT FOR AN ULTRASOUND SCAN AND PROBABLY FOR A LIVER BIOPSY..
From SENSY:
i've just been diagnosed with hep b and the disease had already wreck my entire life.i've stopped my education, deserted all my friends and some family members as well.i'm so depressed to the point of suicidal and i could locked myself up..
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1267
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Sat Feb 21, 2009 - 14:49
By
SENSY
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I have been diagnosed roughly 6 years ago but I believe my infection could have been 2 years before that. I really appreciate that there is group like this because we can rarely find someone who is in the same situation as ours.
It would be nice to ..
hi
my name is Les i'm a 50 yr old gay guy in s wales recently diagnosed with chronic hep b. i would be happy to communicate via e mail, but am looking for more personal contact. if you like, please drop me a line. i'm on the message board.
thanks le..
From gerber:
I have been diagnosed roughly 6 years ago but I believe my infection could have been 2 years before that. I really appreciate that there is group like this because we can rarely find someone who is in the same situation as ours.
It wou..
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1424
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Wed Oct 15, 2008 - 13:03
By
FOGGYZED
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hi my names andy and i was diagnosed has having acute hep b about 7 months ago they only found out because i was feeling bit lousy and under the weather because of home life/work etc so the doc took bloods and found my alt was high amongst other thin ..
Hi Andy,
I can't say how much I can help, but I can certainly chat as a chronic hep b carrier, diagnosed routinely on pregnancy. If you read my post in Emotional response, you will get an idea of my circumstances and problems, which are nowhere near..
hi singlemum
all i know at the moment is my hep hb sag is positive amd my alt has been elevated up around the 250 - 390 mark for the last 7 months and my clotting levels are abnormal(so on medication for that) i go back on thursday for the results o..
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1499
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Sun Feb 03, 2008 - 21:14
By
andyp
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