Posted: Mon Jan 19, 2009 - 02:32 PM

Hi Andreea_22, and all,

I was diagnosed with HepB 6 months ago, which the doctor say I problaby had it from birth.

Today I had my 6 month check up and give a blood sample.

The Doctor says I will need a liver biopsy ;0(
Did you have a liver biposy?
I am a bit like you Andreea_22, I always worked long hours and I always have high enery levels and I play alot of sport. (Playing football tonight too ;P)

I understand why they need to do one.... but my question is...... how bad is the pain?
Im a bit scared thinking about it.


Thanks

Posted: Mon Jan 19, 2009 - 04:51 PM

Hi,

I am not on any medication or treatment. I guess this is why the doctors wants me to have a liver biopsy to work out if I do need treatment or not.

To be honesty Im not one for taking medication (i.e. drugs), I like to look at natural ways of staying healthy. For example eating the right foods, staying fit etc. But I guess we have to wait and see what my result comes back with.

At the moment I feel great and I feel there is nothing wrong with me.

Thanks,

Posted: Mon Jan 19, 2009 - 09:20 PM

Thanks, I will do...its good to talk to someone in the same situation.

Take care

Posted: Sat Jan 24, 2009 - 04:30 PM

Hi Andreea, I'm glad you found this web site, it took me a long time to find this too. I've been dealing with Hep B for many years not at much as the rest of those on this message board but I have been having treatment for many years now and it helps if you can speak to someone about this. This message board is a start and gives you the oppertunity to speak out. It's not nice living in silence with something inside which many people don't understand. Finding information about what you have is either too simple or too complex. Simple being what it is and what are the options and complex being reading about biological/chemical theory.

Just to let you know, you are not alone and you will get the support from the team who leads this web page. You are welcome to email me and ask any questions see my messages which give you a picture of where I am with Hep B.

anil.7.patel@gmail.com

Regards

Anil

Posted: Sun Jan 25, 2009 - 09:21 PM

Hi Anil!

Yes, it is a very good website and it really made such a difference to me, beucase I can talk to people openly about my problems and we can all learn from each other. Unfortunatly I cannot do the same with my close friends. People can be quite funny at times and become very judgemental and reject you. I spend a lot of time reading messages on the web and looking for information about HepB and I already feel a bit better and a bit more confident. I hope I can beat this virus. I can at least try and this website helps me a lot.
I wish there was a bit more activity on the chatting board thou. There are a lot of viewers but very few people actually get involved into discussions which is sad, beucase I look forward to new messages or new posts daily, but .....
Thank you for writing to me. I shall add your address to my msn messenger if you don't mind. I am always happy to make new friends. As you I find it difficult to live in silence and I am glad that I have a way of meeting people with whom I have something in common.
Hope to speak to you again soon

Warmest regards,
Andreea

Posted: Sun Jan 25, 2009 - 10:31 PM

Hi Andrea! Hearing you have HepB is a terrible thing. I assume you have chronic HepB. BUT THERE IS ABSOLUTELY NO NEED TO THINK YOU WILL NOT HAVE A HAPPY AND USEFUL LIFE WITH HEPB. I used capital letters to show you how strongly I feel about this. It is sooo difficult I know to come to terms with having HepB but it does come with time. If you want to be a part of another support list please consider going to http://www.geocities.com/Heartland/Estates/9350/ and read that website and click on the part called "The hepatitis B mail list". You join the group and you can send this message you just posted in an email to the List members and you will, for sure, get many replies from people who also have HepB. But please keep posting on this message board as well so you get the best of both worlds.

Posted: Sun Feb 01, 2009 - 03:05 PM

Hello Ian!

Yes indeed having chronic HepB is a terrible thing. And no I can't get use to it. Is not very simple to deal with it. I am aware of the fact that by keeping a negative attitude won't make me feel better all the contrary, but I can't help it. I feel sad. I don't know why this has happend to me. Why is it active now if I had it in me since I was a little child? I'm really confused. Thank you for the website address. I will join that support group as well. The virtual friends are my only friends just now and I#m happy to talk to someone.
Many thanks again,
Andreea

Posted: Sun Feb 01, 2009 - 08:36 PM

Hi All,

Hope you are all well. - it a bit cold in the UK today isnt it?

Clara - thanks for the info about the liver biopsy. I will let you all know how I get on.

mmx1233

Posted: Tue Jun 23, 2009 - 03:07 PM

Hi, I can understand the depression although i dont even know if i have it yet. Me and my husband are trying for a baby with no results and many other problems wrong with us so we have been having tests done and he found out just last night that he has Hep B. I have never been vaccinated against it and had blood samples taken yesterday so in a week or so ill find out if i have it too. My husband is big guy and a bouncer and likes to act manly and never cries and he broke down last night, as did i. We are beside ourselves. He is African and so i am thinking he may have had it since birth.
His father died young as have many men in his family and as the medical system is very different in africa there are no ways of finding out why he died or his uncles, cousins etc but i am wondering may this have anything to do with it and perhaps we will find out from this maybe all my in-laws have it too which will be devastating.
I have found this site today which has put me so much at ease, some of these stories are inspirational and like most of you, i was (and still am) so ignorant to this disease. I cant believe how common it is and so easy to catch and noone knows about it!! Of course i had heard of it but never knew what it was. I even went to Africa for the first time in December and had all the vaccinations before i went at the GPs. I had the Hep A but no Hep B. Why? I just dont know or understand why everyone doesnt get this in school or sometime in young life. People should be educated on this.
In sex education in school i learnt about pregnancy and a few main STIs and HIV, AIDs etc but i dont recall any mention of this!!
Anyway I didnt want to tell anyone but after reading stories I dont want to take a back seat. Im going to tell all my family, friends and anyone i come accross and try not to be ashamed of it. We have done nothing wrong and the more people i tell then the more people will know about it and be aware. Of course im worried about friends backing away and treating me differently but if they do that then i guess theyre not real friends and i will just learn the hard way!!
Well this site has given me a glimmer of hope and hopefully i will get good news next week although im doubting it but either way this scare itself has taught me so much, how we never know whats around every corner and also i can still tell people about this experience and make people aware.
Very little is making sense still and im going to keep doing my research and learning about the virus, treatments etc. I am young (22), i dont drink, smoke or drink coffee etc. I dont really eat too badly although i am overweight (mainly due to lack of exercise) and today i woke up to a healthier me and im hoping i keep that up so maybe i can get a positive out of such a negative situation!!
My husband eats badly but he is a fitness freak and loves to body build so physicaly hes in better shape but who knows what happens next. Does anyone know if health plays a huge part in this??
I would also like to know if this can be passed on through saliva?? If so are my friends and family at risk, eg sharing cups etc??
Anyway im sorry i wrote this long letter but i would love someone to talk to about this if there is anyone who would like to be my sort of internet buddy that could help me out and i could do my best to help you out too???
Good luck everyone and stay strong!! xxx

Posted: Thu Jul 16, 2009 - 01:57 PM

Hi,
Got the results yesterday. I am clear of the virus which is great news but my husband has it.
I didnt understand how he could have is and i didnt after so long but she i explained briefly how i was in the 95% who clear it and hes in the 5%. Hes really happy because i am clear (which i was too of course) but im devastated about it. Im not sure he fully understands what he has really but hes happy and i dont want to dampen that.

I just want to know the answer to a very dark question, if anyone could help me please, but what is the average life expectancy of a HBV sufferer?? I know theres many factors about it. The doctor said a very healthy person can live upto the age of 70. Which is great its not a bad age but its still 10-20 years less then most.

Anyway hes coping amazingly with the results, mainly because he was just worried about me, but i wasnt worried about myself- i was worried about him, so im coping ok with the news but devastated.

Do you have it floral_luggage if you dont mind me asking??

Does anyone know what the next stage is after you first hear the news??
I got my 1st vaccine for immunisation yesterday and she is sending a letter to the specialist. Thats all i know.

Thanks x

Posted: Sat Aug 22, 2009 - 12:06 PM

Hi Brit,
Thankyou SO much. That really is so helpful. everytime i come on this website i feel so much better.
I am now fully immunised although those who have been immunised are talking about having a blood test afterwards to make sure....i havnt had one or been told about it. Ive just been told to return in 1 years time for a booster!!
Anyway i too am educating myself as much as I can. Its still makes little sense at the moment but im learning!!
As for my husband he hasnt said much at all. He kind of refuses to tlak about it still. He never seems sad or down about it and has made no effort to learn about anything. This scares me more but I think maybe for now it is best to give him space and im not going to force him to as I dont think hes fully accepted it yet. He keeps making comments about death though which scares me. I hate it when he talks about it. Im only 22 and he is 29 so its not nice to think about death at my age just yet!! Other then that he doesnt say much.
Ive just bought some books which will hopefully help me get my head around all the new words and treatments.
He has now finally received a letter saying he has an appointment with the specialist but not for another 5 or 6 weeks which i think is terrible - almost 3 months after the diagnosis!! We have no idea what stage hes at. He has never drunk a drop of alcohol in his life or smoked so thats one positive. He eats half healthily but goes to the gym 6 times a week and has for a good 10 years so hes physically fit so hopefully it will all work in his favour but i know it isnt as simple as that.
Im very relieved to hear the 70 years thing is a load of rubbish and has eased my mind so much so thankyou for that.
Its also great to hear about treatments. Can you body ever develop its own immuninity and antibodies the the virus??
Anyway im glad to hear you are doing well and you have been a huge help.

Good luck you you too!!

Posted: Fri Apr 22, 2011 - 08:09 AM

Hello everyone


I just came across this website and have found everyones stories very useful as I am in the same situation. I know there has not been any posts for many years, but i am happy to keep this posts going.

I am from Sydney Australia. We do not have any websites like this one.

Heres my story.

I was diagnosed with Chronic hep b when i was about 5 years old. I could have had this since birth (but my mother does not have Hep b). I recently went and got a blood test done and the hep b status is still hep b e antigen positive.

I never understood this virus or the potential effects it can have on your health. When I was young i never really worried about it (as i was young ang ignorant) and did not get any blood tests done for almost the last 10 years. My latest blood test shows my liver to be functioning ok (my ALT levels are slightly above the threshold - mine was 49, theshold upper limit was 40). So my doctor sent me to a specialist, which i will be seeing tomorrow.

All my life i have been feelign very healthy. I must admit i didnt look after my health when i was younger. I am now 27 years old. I used to drink socially only, never smoked, and ate a diet which could have been better. I have now given up alcohol, and started eating a well balanced diet (started 2 weeks ago after after the blood test and my doctors advice.

I really hope that I do not need any medication and that my liver is fine and no damage have been done to my liver. It has been very had for me to accept I may need to live with this virus for the rest of my life, but hoipefully a cure can be found in the very very near future. This is possible, considering the advances in medicine in the last 10 years. There werent any medication 10 years ago as my doctor told me back then.

There is a 25% rate chronic hep b sufferers will develop some sort of lvier problem in their lives. But i think those 25% are for most people who do not get diagnosed, do not look after their health, drink and smoke, and are not educated on the the dangers of Hep b.

With reading so many websites and forums over the last week or so, there seems to be now a much greater chance of survival if you are detected early and look after your health, and follow the simple steps of regualr bllod tests and screening.

SO MY ADVICE FOR PEOPLE IS - DO NOT SHY AWAY FROM IT - ATTACK THE VIRUS BACK

I really hope there peopl continue to participate on this website and share stories of treatments, looking after health, test results, and general education. With this we can all overcome this terrible virus and increase everyones chances of survival.

Thank you so much for reading

Simon

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Posted: Sun Jan 08, 2012 - 08:33 AM

hi everyone,am gilbert cm, am 30 years old single from philippines, I am new to this site and would like to share my experience regarding hep b virus..
from our native province, at the age 25 I decided to move out and find my self a better opportunity to provide better financial support for living, i was then employed on call service as line operator on a big firm baking company from oct to dec 2005, when i came back on jan 2006 from a vacation the company is hiring me for contractual, i was very happy for the good news and sent for medical check up as a requirement, the findings was very bad and shocking..i was diagnosed hep b positive carrier..
from the moment the doctor talk to me about it,i feel great weight on my shoulder, my heart beat speeds up, my joints were shaking, i felt cold and so depressed..so i went home after the advice of the doctor he sent me for a specialist and recommended me to be fit to work after final clearance of the virus..since then i had never come to see my doctor nor tell anyone about my situation except for my family and relatives, the truth is my younger brother was the first one diagnosed to have the virus just like me he was applying for a work, he was totally depressed, i mean he was defeated by failure and lost his fighting spirit until now he always stays in the house no one knows whats on his mind, he is hard to communicate with sometimes no response at all he already created his own world...being his elder brother i missed those moments in our lives that i see him lough,some time i cry thinking those happy moments that we shared in the past, i just wish and hope now that he will someday bring back his life in our world..
although, i also feel my emotional weakness, it was my prayers that makes me strong, even i cry many times for my situation i still gain courage, i feel the presence of God even more near in my life it's just a matter of faith that makes me live normal despite of everything..
after my diagnosis, i didn't give up finding a good job..hence, i still continued distributing my resume's on job hiring companies although am aware medical screening it was a suicide trial and error but i have no choice..a couple of weeks later was than hired as a machine operator on a ceramic tile manufacturing company for five months contractual, so lucky for me that hep b test was not included during the medical exam but unfortunately my 5 month contract was finished..
through prayers and faith, one month later after i was finished contact, it was august 2006 i was again employed 5 months trainee and 5 months contractual on a semi conductor company and fortunately hired regular employee still lucky that hep test was not required during medical. I this company that i have better opportunities because from operator i was promoted as technician although at present am still under 3-6 months observation I just hoping that i will be totally considered..
behind all of this opportunities, i can't hide within my self my fear of losing my job because of my situation, am afraid to lose my hope for the future just like my brother who lose his world, my only wish is that my brother would recover and to have my self a opportunity to work abroad..I believe that i can live long and normal like any other people,, please someone help me my wish come true...

brands

Posted: Thu Mar 01, 2012 - 01:49 PM

Hi everyone. I hope to find friends here who could really understand someone inflicted with infectious disease. Like all of u, im also suffering from hepa b. Worst, im a nurse and i felt like being paralized now and useless..

Posted: Fri Mar 09, 2012 - 12:29 AM

Hi JCD

I feel paralised when i meet nhs and other powers that still plan almost no vaccination and safety testing until 2022.

As bad as diagnosis is it is usually a garantee you wont die or infect someone else and workwise there are options for nurses to retrain a little or medicate a little and carry on.

I have lost sleep over some of the thousands of patient/carer contacts/calls i've taken, but i lose more over the 400,000 undiagnosed carriers out there with no blood hygiene or vaccinations around.

Our hbv strategy ranks as bad as Iraq, Afganistan and the Congo at both vaccinating and testing according to World Health Organisation data and Disease mapping.
http://www.hepb.org.uk/news/current/GPDiagnosticTools.pdf
Page 13 highlights the vaccination levels.

i like to see the undiagnosed as carriers and able to infect others by accident ignorance, the diagnosed in my experience carry and share the vaccine and never the bug.

Paul

Posted: Fri Mar 16, 2012 - 10:33 PM

Hi Dennis

Just look in her eyes, hold her hand and tell her you have hbv and she needs a quick vaccination. Once that is sorted you make love have kids and get them vaccinated, then grandkids and get them vaccinated. then you grow old and die of old age not hbv because you are diagnosed and she is vaccinated.

This is how it is for 400 million people.

If you know this future wife already it's already time to do the above. If, like many of the helpline callers this advice leads to a marriage do let us all know.

Paul

Posted: Tue May 21, 2013 - 02:50 PM

I am a 22 yr old guy from India and I am very pleased to see this website. Just like many others on this forum I have chronic hep B. I was first diagnosed with this when I was 15 yr old. I was a child then and I didnt know anything about this condition. I used to search for new information on internet for hours and hours altogether and for any potential cure. My medical history shows that I was previously vaccinated for hep b at 8 yr. But vaccine had failed in my case or probably I had infection much before I was vaccinated. Nobody in my family has this. I had strong faith that if I lead a healthy lifestyle and eat all healthy food it would eventually go away. I prayed to god everyday for this. But obviously nothing happened.

Although i am quite healthy i fear everyday that I will die early of cirrhosis or cancer or something. I pretend in front of my friends like I am very cool and i act all funny but on the inside i am really pessimistic.

Doctors never tell the full story. Sometimes less experienced doctors themselves dont know how to manage this condition. I can say this because I am in a medical school myself and i will qualify as a doctor soon. I read on this topic and try to gain as much knowledge as possible. but at the same time i feel scared of all the things that are going on inside me.

If any of you want to be my friend u can contact me as i would be great to share my experiences coz i cant talk about it to my friends